Every day, infants, children and adults around the world receive an FPIES diagnosis and suddenly find themselves navigating fear, isolation, uncertainty, and a condition that few healthcare providers have ever encountered. Parents become researchers overnight. Children and adults with FPIES often struggle to find knowledgeable providers. Many families feel like they have nowhere to turn.
That is why the International FPIES Association (IFPIES) created Loni’s Lounge, the world’s only FREE telecoaching platform dedicated exclusively to supporting children, adults, caregivers, and families living with Food Protein-Induced Enterocolitis Syndrome (FPIES).
Today, we’re asking for your help to ensure this vital resource remains available to everyone who needs it.
Our Goal for 2027
We’re raising $100,000 to provide 1,000 FREE telecoaching sessions in 2027.
Every dollar raised will ensure that newly diagnosed families, adult patients, and caregivers around the world have access to compassionate, expert guidance, regardless of where they live or their ability to pay.
With your support, IFPIES can:
- Sustain the only global telecoaching program dedicated exclusively to the FPIES community.
- Expand access to pediatric and adult patients worldwide.
- Recruit, train, and support additional volunteer FPIES Telecoaches.
- Eliminate wait times so families receive help when they need it most.
- Continue providing trusted, evidence-based education and emotional support at no cost.
- A Place for Hope, Guidance, and Connection
Loni’s Lounge offers free virtual coaching sessions with experienced FPIES Telecoaches, helping individuals and families:
- Navigate daily life with FPIES.
- Build confidence with food introductions.
- Prepare for school, daycare, college, and work.
- Travel safely and advocate confidently.
- Manage social situations and dining out.
- Find reliable, evidence-based resources.
- Navigate the trauma and fears of FPIES
- Feel supported by someone who truly understands the FPIES journey.
- Every session is offered completely free of charge.
Why Loni’s Lounge Matters
Loni’s Lounge was created in honor of the late Loni Stillerman, beloved wife of Dr. Allan Stillerman, in recognition of her passion for living life with love, compassion, and hope.
The generous philanthropic support of the Stillerman family enabled IFPIES to provide this invaluable service at no cost to FPIES patients and families who self-manage the many limitations, fears, and daily challenges of living with this rare disease.
A tireless advocate for clinical consistency and improved patient care, Dr. Stillerman envisions a future where patients, families, and healthcare providers are connected through the most current evidence-based information available. Loni’s Lounge stands as a symbol of the Stillermans’ enduring love and their unwavering commitment to improving patient care and provider education worldwide.
The Need Has Never Been Greater
Every week, new families discover IFPIES searching desperately for answers.
Loni’s Lounge has become a lifeline.
Research demonstrates the profound psychosocial burden experienced by FPIES patients and their families:
- 53.6% of families reported they choose not to send their child with FPIES to school due to safety concerns.
- 73.8% of families reported they are frustrated by others’ lack of understanding of their child’s FPIES.
- 78% of families reported that those living with FPIES are unable to consume the same diet as others.
- 74.9% of families reported moderate stress, highlighting the significant psychological burden of managing FPIES.
- 65% of FPIES patients reported they have comorbid atopic diseases, complicating care and increasing support needs.
- 66.7% of families reported anxiety, often related to dining and food safety concerns.
Loni’s Lounge was created to address these very challenges. Through free, confidential, one-on-one telecoaching, families receive practical guidance, emotional support, and evidence-based resources that help reduce isolation, build confidence, and empower them to navigate life with FPIES.
Source: Maciag MC, Herbert LJ, Sicherer SH, et al. “The Psychosocial Impact of Food Protein-Induced Enterocolitis Syndrome.” Journal of Allergy and Clinical Immunology: In Practice. 2020.
Demand continues to grow, but so does our commitment to ensuring every family has somewhere to turn.Behind every statistic is a child who misses school, a parent who loses sleep, or an adult who feels isolated because no one understands their disease. Loni’s Lounge exists to change that—but we can only continue this life-changing work with your support.
What Your Gift Provides
Your generosity directly fuels free coaching, education, and hope for families around the world.
$25 – Helps provide educational resources and coaching materials for one family.
$50 – Supports one personalized telecoaching session for a newly diagnosed patient or caregiver.
$100 – Helps connect two families with trained volunteer Telecoaches who provide individualized guidance and emotional support.
$250 – Supports volunteer Telecoach training and continuing education, ensuring families receive accurate, evidence-based information.
$500 – Helps expand Loni’s Lounge by supporting technology, scheduling, and outreach so more families worldwide can access free coaching.
$1,000+ – Becomes a leadership investment that helps sustain and grow the only free global telecoaching platform dedicated exclusively to pediatric and adult FPIES patients and their families.
Every gift, large or small, moves us closer to our goal of providing 1,000 FREE coaching sessions in 2027.
Hear From Families We’ve Helped
“Fallon and Loni’s Lounge has been a long needed support. After just 1 conversation, I had more tools and resources than I’ve had visiting my son’s Allergist and Pediatrician. FPIES can be so overwhelming and it’s incredibly comforting knowing that I have support when I need it. Not to mention that all of it is no-cost. Thank you to Fallon and the rest of the team. I know that I will be utilizing these services again after I have gotten through my initial to-do list. I walked away feeling a much needed sense of relief and guidance.”
– V.N. FPIES Mom
As a parent of a child with complex comorbid FPIES, Loni’s Lounge has been a truly meaningful resource for our family. Living with FPIES means that so much of our day-to-day life involves planning, worrying, and advocating for our child. Having someone who understands that journey and can provide support beyond the doctor’s office has been incredibly comforting.
The individualized, hands-on guidance we receive, from navigating 504 plans and finding FPIES-friendly foods to preparing for travel and social situations, has helped us feel more confident and less alone. Loni’s Lounge doesn’t just provide tools, it provides understanding, reassurance, and people who truly get it.
For our family, knowing that someone is there to help us navigate the everyday challenges of FPIES has made a tremendous difference. We are so grateful for Loni’s Lounge and the support it provides to both our child and us as parents.
Meghan S. – Mom
Will You Help Us Reach Our Goal?
Your donation today will ensure that no child, adult, caregiver, or family has to face FPIES alone.
Together, we can raise $100,000 to provide 1,000 FREE coaching sessions in 2027, bringing expert guidance, compassionate support, and renewed hope to families around the world.
Please make your gift today and help keep Loni’s Lounge free for everyone who needs it.
Thank you for believing that every family deserves access to hope, education, and support.
Always here for you,
Fallon Schultz, MSW, LCSW, CAM
IFPIES Founder & CEO
International FPIES Association