ReAllergies Podcast

ReAllergies Podcast

The reALLERGIES FPIES Podcast is a compassionate, insight-driven series dedicated to exploring the real stories, clinical science, and advocacy shaping the world of food allergies—especially Food Protein-Induced Enterocolitis Syndrome (FPIES). Through meaningful conversations with clinicians, researchers, parents, advocates, and patients, our FPIES podcast brings clarity to conditions that are often misunderstood, misdiagnosed, and emotionally overwhelming for families navigating them in real time.

reALLERGIES Podcast Episode 3: Rethinking FPIES Oral Food Challenges | Part 2

Welcome to Episode 3, Part 2 of the reALLERGIES Podcast—a deeper look at oral food challenges for FPIES (Food Protein-Induced Enterocolitis Syndrome) and how evolving research is helping clinicians make ...these procedures safer, more individualized, and more manageable for patients and families.

Joined by Dr. Sara Anvari from Texas Children's Hospital and Dr. Anna Nowak-Wegrzyn, Fallon Schultz explores the clinical side of oral food challenges, including what actually constitutes a full serving size, why a one-size-fits-all approach doesn't work, and how newer protocols are considering smaller, fractional doses to potentially reduce the severity of reactions.

The conversation also examines the difference between supervised oral food challenges and at-home food trials, how clinicians approach patients who react only after repeated exposures, and why shared decision-making is so important when determining how quickly foods should be introduced or increased.

You'll also hear an important discussion about emergency management, including how medications such as ondansetron have changed the experience of FPIES reactions and helped give patients and families greater confidence when navigating food introduction.

Throughout the episode, Fallon, Dr. Anvari, and Dr. Nowak-Wegrzyn emphasize that successful FPIES care requires more than a protocol. It requires collaboration between clinicians, researchers, advocates, patients, and families—and an individualized approach that balances medical safety with quality of life.
If you or someone you love is navigating FPIES, you are not alone.

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💬 Share your experience or questions as a patient, parent, or clinician in the commentsShow More

reALLERGIES Podcast Episode 3: Rethinking FPIES Oral Food Challenges | Part 2

reALLERGIES Podcast Episode 3: Rethinking FPIES Oral Food Challenges | Part 2

reALLERGIES Podcast Episode 3: The Emotional Reality of FPIES Oral Food Challenges | Part 1

reALLERGIES Podcast Episode 3: The Emotional Reality of FPIES Oral Food Challenges | Part 1

reALLERGIES Podcast Episode 2: Research, Trauma & the Future of FPIES Care | Part 2

reALLERGIES Podcast Episode 2: Research, Trauma & the Future of FPIES Care | Part 2

reALLERGIES Podcast Episode 2: What Patients Really Need in FPIES Care | Part 1

reALLERGIES Podcast Episode 2: What Patients Really Need in FPIES Care | Part 1

reALLERGIES Podcast Premiere: “We Can Help You Live With It” — Managing FPIES Day to Day | Part 2

reALLERGIES Podcast Premiere: “We Can Help You Live With It” — Managing FPIES Day to Day | Part 2

Welcome back to the premiere episode of reALLERGIES Podcast — a series exploring FPIES (Food Protein-Induced Enterocolitis Syndrome) through the combined perspectives of patient, parent, and clinician. In Part 2, ...Fallon Schultz (Founder & CEO of the International FPIES Association) is joined again by Dr. Anya Nowak-Wegrzyn (Chief of Pediatric Allergy at NYU Langone) and Fallon’s son Landon, a teen living with FPIES, as they dive into the realities families face after diagnosis: fear around food, the trauma of reactions, and the exhausting “waiting game” of oral food challenges.

Dr. Nowak-Wegrzyn explains why one of the biggest unmet needs in FPIES is a reliable diagnostic test — because right now, the “gold standard” is still the oral food challenge, an all-day, high-stress process where families often go in with little certainty. Fallon and Landon share what this looks like in real life: the travel, the scheduling headaches, the anxiety, the toll on school and sports, the difficulty of IV access, and the emotional weight of not knowing what will happen next.

But Part 2 also focuses on what’s possible. You’ll hear why most patients eventually outgrow triggers, what it feels like to finally “pass” a food after years of avoidance, and how families can build a healthier relationship with food even inside strict limitations. Fallon emphasizes the importance of clinical support that validates lived experience — and how the International FPIES Association helps bridge families to care, resources, and clinicians who truly understand this condition.

This episode closes with takeaway messages for parents, patients, and clinicians: keep an open mind, listen closely, start small, communicate with compassion, and remember this is a syndrome you can learn to live with — and you don’t have to do it alone.

📍 Next up: behind-the-scenes from AAAAI with the latest FPIES updates and advocacy work in action.
📩 Topic requests: contact@fpies.orgShow More

reALLERGIES Podcast Premiere: FPIES Through Three Lenses (Parent, Patient, Clinician) | Part 1

reALLERGIES Podcast Premiere: FPIES Through Three Lenses (Parent, Patient, Clinician) | Part 1

reALLERGIES End Pt1

reALLERGIES End Pt1

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You Can find the reALLERGIES Podcast on Apple Podcasts and Spotify Podcasts, or just listen using the player on this page.

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You Can find the reALLERGIES Podcast on Apple Podcasts and Spotify Podcasts, or just listen using the player on this page.

Listen Here: