Bridging the gap
On our new “Meet the Researcher” tab at FPIES.org, all open and completed studies and supplemental publications will be video-recorded and easily accessible to patients and caregivers. Are you an FPIES researcher with interest in participating or a potential program sponsor? Email us at firstname.lastname@example.org to learn more.
Meet the Researcher: Series One
Are You an Adult with FPIES?
Researchers from the Division of Allergy at the University of Rochester, Hassenfeld Children’s Hospital at NYU Langone, Texas Children Hospital, Boston Children’s Hospital and Children’s Hospital of Philadelphia, in collaboration with International FPIES Association (I-FPIES: www.fpies.org), invite you to complete an online questionnaire to better characterize the experience of adults with FPIES.
Your answers will help the medical community to better understand your experience with adult FPIES and other adults affected by this disease. If you are interested in participating in this study, please click this link: Adult FPIES Questionnaire to answer the interactive questionnaire. There is an information letter that describes the study in more detail once you start the survey.