Dear friends of I-FPIES,
Today, the International FPIES Association (I-FPIES) marks our 13th anniversary of serving patients and families. This milestone is the perfect time to announce the launch of the first phase of our newly enhanced website!
The changes we have made are for you, our FPIES community, in the hopes that it will better communicate and connect you with the work that I-FPIES is doing. It starts with a more streamlined, dynamic design, and simplified access to resources and information on Food Protein-Induced Enterocolitis Syndrome (FPIES).
We hope the website will better enable you to learn, connect, and take action at FPIES.org. We welcome your visit and your feedback. If you have any suggestions or questions, please email our team at contact@fpies.org.
And more big things are ahead for the website! Stay tuned for the release of phase two of our website upgrade (expected in 2024), which will include an expanded version of FPIES University and the introduction of three new programs tasked at patient-centric research engagement, a global biospecimen patient registry, and a one-of-a-kind free tele-health program aimed to provide our patient community with real-world, hands-on support and guidance.
The website update is just one part of I-FPIES efforts to support families living with FPIES and educate others about the disease. The initiatives highlighted on FPIES.org will drive greater awareness, empower our community with the tools they need to advocate on behalf of the estimated 2 million people living with FPIES. In addition, the site will help advance funding for research that will uncover new approaches to diagnosis, treat, and eventually, the hopeful cure of FPIES.
To help us continue to unlock answers and support FPIES patients and families, please consider making a gift to mark this anniversary. On this special day, we are grateful to all who have supported our mission and initiatives over the past 13 years — we couldn’t have done it without you!
Warmest wishes,
Fallon Schultz
I-FPIES Founder & CEO