Your Patient Care Packet

When your child is diagnosed with Food Protein-Induced Enterocolitis Syndrome (FPIES), it can be an overwhelming, confusing and stressful time. Where do you start? From doctor's appointments to medications, from food trials to phone calls with the insurance, how do you keep track of everything?

Our Patient Care Packet is your essential tool kit to assist in getting and organizing the critical information you need immediately after an FPIES diagnosis and throughout the journey. The contents below give you the ability to compile one central binder so you'll have all the patient-specific information you need at your fingertips. Just print and complete the pages, bring your binder to appointments, and update as needed.

After all, getting organized from the start can be a powerful way to take control of your child's FPIES journey.

Overview of Patient Care Packet Contents

Section A: Medical

Medication Log

Medical/Surgical History Log

Family Medical History Log

Family Health History

Emergency Letter

Care Cheat Sheet

Caregiver Action Plan (Update every 6 months)

Section B: Insurance/Contacts

Appointment Log

Insurance Log

Family and Emergency Contacts

Specialist Contact List

Section C: Food Journals

Nutrition and Daily Care Sheet

Food Journals (Coming Soon!)

Section D: Education

FPIES Fact Sheet

Nutritional Guidelines

Overview for Health Professionals

Reading Food Labels (AllergyHome)

"FPIES from the Parent's Perspective"

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