I-FPIES is grateful to the policymakers, legislators and advocates who have continued to fight on behalf of all patients and families affected by food allergies. As a condition, FPIES is still in the early stages of advocacy, but great strides have already been made to develop safety protocols and policies for those impacted.
Below is a comprehensive list of the current U.S. laws and regulations that offer protection and support to those living with FPIES:
Diagnosis and Management Guidelines
Guidelines for the Diagnosis and Management of Food Allergy in the United States: http://www.niaid.nih.gov/topics/foodallergy/clinical/documents/faguidelinesexecsummary.pdf
Guidelines for the Diagnosis and Management of FPIES: COMING SOON!
Children's MAGIC, States with Elemental Formula Coverage: http://www.childrensmagic.org/pages/statesresources.html
Draft Bill: To Ensure that Infants and Children Affected by Certain Clinical Conditions Receive the Proper Medically Required Nutrition in Order to Sustain Life: http://www.childrensmagic.org/pages/pdfs/Draft%20Bill.pdf
The Issue In Depth: http://www.childrensmagic.org/pages/pdfs/The_Issue_In_Depth_March08.pdf
The Fight for Coverage; Elemental Formulas: http://www.childrensmagic.org/pages/pdfs/2008%20Briefing%20Book.pdf
American Disabilities Act: http://www.ada.gov/
Family Medical Leave Act: http://www.dol.gov/whd/fmla/
Guide to Disability Rights Law: http://www.ada.gov/cguide.htm
Section 504, Rehabilitation Act of 1973: http://www.dol.gov/oasam/regs/statutes/sec504.htm
Voluntary Guidelines for Managing Food Allergies in Schools and Early Care and Education Programs: http://www.cdc.gov/healthyyouth/foodallergies/pdf/13_243135_A_Food_Allergy_Web_508.pdf
Questions and Answers on the ADA Amendments Act of 2008 for Students with Disabilities Attending Public Elementary and Secondary Schools: http://www2.ed.gov/about/offices/list/ocr/docs/dcl-504faq-201109.html